Today was pretty fun! Albert and Scarlett (the friends from front page) came to visit and they brought some of my favorite snacks. My stomach and throat was hurting a little bit throughout the day, but the PCA really came in handy. The hardest part was swallowing pills, and I have about 15 of those to take every day. For some reason when I drank the HI-C juice boxes that my friends brought, it didn't hurt my stomach at all. MAGIC JUICE! On less happy news, I'm retaining fluid which means my kidney isn't functioning properly. But it's not a super huge worry, and they have me on like 3 meds that should help. My stomach is swollen, and I'm getting that pregnancy chic look once again.
TOMORROW IS THE BLOOD DRIVE! Make sure to come on down to the Burbank High School gym anytime from 9am-3pm. Even if you aren't able to donate, show some support and enjoy some yummy food ;)
It's late and I'm very tired and drugged out, so farewell for now.
The past few days have been pretty rough. I have what's called "mucositis" which is basically inflammation of the mucus membranes all the way through your digestive tract. So I've been throwing up, while having to deal with stomach pain and throat pain. It's not fun at all. To add insult to injury, I tested positive for C. Diff. Colitis, which I've had 3 times now. This is inflammation of the colon, and causes lots of abdominal pain. So today they started me on a PCA, or patient-controlled analgesia. This sounds fancy, but all it is is a little button connected to my pain medicine machine that i can press whenever my pain spikes. It's super helpful, and makes the experience a lot easier. The only problem is it makes me super tired and zoned out, so i've just been sleeping most days. It's late now, and I really want to go to sleep but I have to wait for one of my new meds to arrive before I can doze off. Hopefully that arrives soon... wish me luck!
Hello! In honor of my BMT birthday I've donated $250 to Be The Match, which is an organization that helps cancer patients find their donors.
Today's the day! At approximately 7pm on September 13th my bone marrow transplant infusion is starting. They just gave me some benadryl, so hopefully i'll just sleep through most of the infusion. They said it'll take about 8 hours, so here's for a long ride. So far I feel good, a bit nervous but no nausea or anything like that. Yay! Take a look at some pictures down below to see how it's all goin ;)
Tomorrow is the big day! It'll be like my second birthday, because i'll have a completely new immune system. Today my mom and I are working hard to make and send out more orders, and I saw a few of you already received yours! Shoutout to Albert, one of our first customers :) I'm still listening to musicals, such as Waitress and Once. I'd suggest those to everyone who loves good music.
Today most of my meds are in preparation for my transplant tomorrow, and a few of them make me feel weird. One of them made my face and tongue feel tingly for some reason, but now the actual infusion is over so that should go away soon. My nausea has been under pretty good control, because I'm on like 10 strong meds for that. On the BMT unit they really don't put up with any nausea or pain, which I like.
Since I'm feeling good today I might hop back on my little exercise bike and try to ride a few miles like I did my first few days here. Tomorrow (being zero day) I'm going to start taking pictures every day and posting them here so you can see my progress. For now, I'm going to keep working on sending out orders.
-Evie (a little drugged out)
Today is day -5, which means that there are only 5 days left until my bone marrow transplant. People have been saying that's like my new life starting, and a more healthy one. I've been doing the exercise bike here in the hospital for the past few days, but yesterday I started feeling a bit rough so I didn't do it. The nausea is kicking in, and I spent most of yesterday throwing up and sleeping. I just got a medicine called Emend, which is supposed to help with nausea and vomiting because of chemo. So far so good. I only have a few more doses of this chemo called Busulfan, and then I get a day of rest. Hopefully i'll feel okay today. My appetite is going away though, and I haven't eaten for a little bit. I had fruit snacks yesterday around 4, but then I threw them right back up. Welcome to the wonderful world of chemotherapy...
Thank you to everyone who has placed an order so far!! Just a day or two of being up and running and I already have about $200 to donate. We are truly making a difference! Don't worry if you don't see your braids arrive quickly, remember I make them individually for your specific order. I'm going to work on them the next few days, and have them sent out soon after that. Thanks again!
Today was my lumbar puncture and Hickman line placement. Both procedures went well, and now I have tubes coming out of my chest. One possible side effect of the lumbar puncture is headaches, because the fluid they take during the procedure creates extra pressure. Last time that happened and I had horrible headaches for 2 weeks. It was the type of pain where I had ice on my head and I just had to lay down for hours. But so far no headaches, so that's a good sign. But now I have tubes coming out of my chest, so that's new. I've also written this post like 3 times because it keeps deleting. Here we are, and hopefully third time's the charm. I'm also still listening to Waitress, that'll probably be a common theme. For dinner I had fish sticks and fries from the cafeteria, which were surprisingly good. I also had a strawberry milkshake pop tart for dinner, which was delicious as always. Bye bye for now!
-Evie (still hungry)
Tomorrow is September 4th, which means the start of my bone marrow transplant. I'm spending the morning watching Criminal Minds and making some braids. Today is Labor Day, so a few family friends are coming over and my dad is grilling. He's gonna make my favorite vegetarian hot dogs, and my mom made pasta salad. Tomorrow I have a lumbar puncture and I'm getting my hickman line (on my chest) put in tomorrow and getting my pickline (on my arm) taken out. The procedure is pretty easy, I'm just not allowed to eat in the morning which is not fun. I'll try to write before and after tomorrow, but bye bye for now!
tODAY: DAY nine